Chris's Seizures

[Shirley M...have a goodaa \\;-\)]

Julie,

Chris has had two MRI's and two EEG's and will probably have a PET scan
> soon. He has the same as your nephew. His fortunately are not convulsive
> but all the other signs, lip smacking, unpurposeful hand motions, sees
stars
> or colors, migraine headaches afterwards, vomiting. They generally don't
> last more than 10-15 seconds but can come in clusters, ie, every hour or
> two. The worst was 5 in a row every hour! He is on Carbatrol 400 mg 2x
> daily and it works - so far. We've had to up the meds and he is currently
> under the care of a ped neurologist at Children's here. The old
neurologist
> thought at PET scan was in order as the MRI showed a brain bruise.
> Something he was born with - from birth - who knows, but it's there. The
> key is to make the bruise non-viable, he felt even one seizure in 6 months
> was too much. He likes the Carbatrol as it's the least side effect med on
> the market. Chris seems to handle the pill taking ok and seems to know
that
> the meds help, at least a bit. If I can be of more help, please e-mail me
> directly. I feel sorry for your SIL or Sister 'cause it's a tough
position
> to be in, one feels like they can't do anything. There is a great book on
> the market that our original neurologist in Minnesota asked us to read,
it's
> on Parenting children with seizures or something like that. It gives a
ton
> of information about the problem.
>
> Good luck.
>

[[email protected]]

I personally would not allow any more vaccines until discovery of the
seizure cause. These are often associated with Autism Spectrum Disorders
(ASD) which many believe to be triggered by the MERCURY (Thimerosal) in
vaccines. One of the possible culprits is the HEP-B given at birth, prior
to the babies blood brain barrier being formed, allowing the MERCURY free
access to the BRAIN. Search for the U of CALGARY video of a brain neuron
being fried by THIMEROSAL - perhaps this views as a brain bruise on a scan.
Some parents have been accused of child abuse because the childs brain has
effects from vaccines resembling abuse. YURKO is one of them. (do a google
search)
www.factsformedia.com
www.scvs.intranets.com

The KETOGENIC DIET has helped some kids with seizure disorders.

My 7 year old had a reaction to his 1 yr MMR and now has AUTISM - but he
was born perfectly healthy and developed normally up to that point.

BTW, HEP-B is worse than useless, unless your baby is going to be sexually
promiscuous or sharing I.V. drug needles on the street.

READ AND BE INFORMED - MAKE YOUR OWN DECISION.
YOUR BABY IS COUNTING ON YOU.
..
Best Wishes.


> The old
>neurologist
>> thought at PET scan was in order as the MRI showed a brain bruise.
>> Something he was born with - from birth - who knows, but it's there. The
>> key is to make the bruise non-viable, he felt even one seizure in 6 months
>> was too much. He likes the Carbatrol as it's the least side effect med on
>> the market. Chris seems to handle the pill taking ok and seems to know
>that
>> the meds help, at least a bit. If I can be of more help, please e-mail me
>> directly. I feel sorry for your SIL or Sister 'cause it's a tough
>position
>> to be in, one feels like they can't do anything. There is a great book on
>> the market that our original neurologist in Minnesota asked us to read,
>it's
>> on Parenting children with seizures or something like that. It gives a
>ton
>> of information about the problem.


Special Needs Community Calendar - LA
www.scvs.intranets.com
www.factsformedia.com

[Shirley M...have a goodaa \\;-\)]

I'm not going to start a war about his but sorry, I have friends very good
friends who suffered from the polio disease!!!! One just died a few years
ago because it comes back in middle age and continues crippling until the
body just stops, I remember vividly mom telling me about people dying from
the lack of tetanus shots (farm accidents stepping on rusty things), my mom
almost dying from Rubella because I gave it to her - luckily she pulled
through, etc, etc. You can do whatever you like with your child. My child
does not have ADS the the brain bruise is just that, probably from the
forceps or pushing for 3 hours!!!!! Get all the facts before you write
something you have no clue about!

Shirley

> wrote in message
...
> I personally would not allow any more vaccines until discovery of the
> seizure cause. These are often associated with Autism Spectrum Disorders
> (ASD) which many believe to be triggered by the MERCURY (Thimerosal) in
> vaccines. One of the possible culprits is the HEP-B given at birth, prior
> to the babies blood brain barrier being formed, allowing the MERCURY free
> access to the BRAIN. Search for the U of CALGARY video of a brain neuron
> being fried by THIMEROSAL - perhaps this views as a brain bruise on a
scan.
> Some parents have been accused of child abuse because the childs brain has
> effects from vaccines resembling abuse. YURKO is one of them. (do a
google
> search)
> www.factsformedia.com
> www.scvs.intranets.com
>
> The KETOGENIC DIET has helped some kids with seizure disorders.
>
> My 7 year old had a reaction to his 1 yr MMR and now has AUTISM - but he
> was born perfectly healthy and developed normally up to that point.
>
> BTW, HEP-B is worse than useless, unless your baby is going to be sexually
> promiscuous or sharing I.V. drug needles on the street.
>
> READ AND BE INFORMED - MAKE YOUR OWN DECISION.
> YOUR BABY IS COUNTING ON YOU.
> .
> Best Wishes.
>
>
> > The old
> >neurologist
> >> thought at PET scan was in order as the MRI showed a brain bruise.
> >> Something he was born with - from birth - who knows, but it's there.
The
> >> key is to make the bruise non-viable, he felt even one seizure in 6
months
> >> was too much. He likes the Carbatrol as it's the least side effect med
on
> >> the market. Chris seems to handle the pill taking ok and seems to know
> >that
> >> the meds help, at least a bit. If I can be of more help, please e-mail
me
> >> directly. I feel sorry for your SIL or Sister 'cause it's a tough
> >position
> >> to be in, one feels like they can't do anything. There is a great book
on
> >> the market that our original neurologist in Minnesota asked us to read,
> >it's
> >> on Parenting children with seizures or something like that. It gives a
> >ton
> >> of information about the problem.
>
>
> Special Needs Community Calendar - LA
> www.scvs.intranets.com
> www.factsformedia.com

[amy]

Sorry Shirley you got bothered by that last e-mail - but the person
mentioned the KETOGENIC DIET which I just watched a program about this
recently (pretty sure it was on NBC Dateline) and it supposedly
produced great results for kids with epilepsy/seizure disorders. Some
even stopped taking the meds all together -
Good luck.
MG





"Shirley M...have a goodaa \\;-\)" > wrote in message news:<LgUVa.20181$uu5.2825@sccrnsc04>...
> I'm not going to start a war about his but sorry, I have friends very good
> friends who suffered from the polio disease!!!! One just died a few years
> ago because it comes back in middle age and continues crippling until the
> body just stops, I remember vividly mom telling me about people dying from
> the lack of tetanus shots (farm accidents stepping on rusty things), my mom
> almost dying from Rubella because I gave it to her - luckily she pulled
> through, etc, etc. You can do whatever you like with your child. My child
> does not have ADS the the brain bruise is just that, probably from the
> forceps or pushing for 3 hours!!!!! Get all the facts before you write
> something you have no clue about!
>
> Shirley
>
> > wrote in message
> ...
> > I personally would not allow any more vaccines until discovery of the
> > seizure cause. These are often associated with Autism Spectrum Disorders
> > (ASD) which many believe to be triggered by the MERCURY (Thimerosal) in
> > vaccines. One of the possible culprits is the HEP-B given at birth, prior
> > to the babies blood brain barrier being formed, allowing the MERCURY free
> > access to the BRAIN. Search for the U of CALGARY video of a brain neuron
> > being fried by THIMEROSAL - perhaps this views as a brain bruise on a
> scan.
> > Some parents have been accused of child abuse because the childs brain has
> > effects from vaccines resembling abuse. YURKO is one of them. (do a
> google
> > search)
> > www.factsformedia.com
> > www.scvs.intranets.com
> >
> > The KETOGENIC DIET has helped some kids with seizure disorders.
> >
> > My 7 year old had a reaction to his 1 yr MMR and now has AUTISM - but he
> > was born perfectly healthy and developed normally up to that point.
> >
> > BTW, HEP-B is worse than useless, unless your baby is going to be sexually
> > promiscuous or sharing I.V. drug needles on the street.
> >
> > READ AND BE INFORMED - MAKE YOUR OWN DECISION.
> > YOUR BABY IS COUNTING ON YOU.
> > .
> > Best Wishes.
> >
> >
> > > The old
> > >neurologist
> > >> thought at PET scan was in order as the MRI showed a brain bruise.
> > >> Something he was born with - from birth - who knows, but it's there.
> The
> > >> key is to make the bruise non-viable, he felt even one seizure in 6
> months
> > >> was too much. He likes the Carbatrol as it's the least side effect med
> on
> > >> the market. Chris seems to handle the pill taking ok and seems to know
> that
> > >> the meds help, at least a bit. If I can be of more help, please e-mail
> me
> > >> directly. I feel sorry for your SIL or Sister 'cause it's a tough
> position
> > >> to be in, one feels like they can't do anything. There is a great book
> on
> > >> the market that our original neurologist in Minnesota asked us to read,
> it's
> > >> on Parenting children with seizures or something like that. It gives a
> ton
> > >> of information about the problem.
> >
> >
> > Special Needs Community Calendar - LA
> > www.scvs.intranets.com
> > www.factsformedia.com