PDA

View Full Version : Sense and Sensitivities ... Multiple Chemical Sensitivities can drive sufferers into poverty


Ilena Rose
July 17th 06, 03:22 PM
http://www.grist.org/news/maindish/2006/03/17/hymas/index.html
By Todd Hymas
17 Mar 2006
Consider the trappings of modern life: Calvin Klein Eternity,
gasoline, Gore-Tex, Aveda hairspray, paint, particle board,
polyurethane iPod cases.


Is this the face of the future?
Photo: iStockphoto.Now imagine that you're allergic to virtually all
of them.

Environmentalists usually think about chemical toxicity as either a
dramatic local crisis (Bhopal, Love Canal) or the simmering concern of
those far away (breast-feeding mothers in the Arctic) or far in the
future (our oft-evoked grandchildren). But for people suffering from
Multiple Chemical Sensitivities, the chemical crisis is already here.
Indeed, thanks to industrialization, it is already everywhere. And,
like so many environment-related health issues, it disproportionately
affects the poor -- and, moreover, drives many once financially stable
people into poverty.

As a disease, Multiple Chemical Sensitivities doesn't have an official
case definition yet (more on this soon), but rather refers to a broad
range of adverse symptoms brought on by an even more broad array of
everyday chemicals. These symptoms are often provoked at exposure
levels far below those that seem to affect the rest of the population
-- levels virtually always present in our homes, workplaces, and
social venues. They commonly include severe headaches, food
intolerances, difficulty breathing, nausea, irritation of the eyes,
ears, nose, throat, and skin, and disorientation or confusion, but
there are many more.

The best information currently available suggests that MCS is a
chronic condition with no cure. Although some treatments (such as
acupuncture) seem to help some patients, recent surveys by the
Chemical Injury Information Network, a nonprofit education and
advocacy organization for people with chemical sensitivities, found
that avoidance of problem chemicals was the only consistently
effective treatment.

If only avoidance were as simple as it sounds. Just as modern life
almost inevitably involves contributing greenhouse gases to the
heating atmosphere, it is all but impossible to navigate the
industrialized world without being immersed in tens of thousands of
potentially troublesome human-made chemicals. And just as an honest
fight against global warming would pose a huge threat to powerful
energy companies, a real effort to take MCS seriously could throw a
wrench into the operations of a huge range of industries that produce
chemicals and chemical-laden products.


Research and You May Not Find

Mainstream medicine has been slow to recognize the role environment
can play in disease. With many doctors either unaware of MCS or
doubtful it's a real condition, simply getting diagnosed is a battle.
Even those who recognize the disease are often unfamiliar with
treatment options. As a result, MCS patients frequently must visit
multiple health-care practitioners -- a process that is both
emotionally and financially costly -- before they can put a name to
their illness and make the necessary (and often radical and pricey)
lifestyle adaptations it requires.


Introduction to the series.
How environmentalism got its elitist tinge.
Photos of Louisiana towns battered by Katrina.
A look at the poultry farms ravaging the South.
How coal mining has scarred the hills of Appalachia.
A virtual walking tour of the polluted South Bronx.
More stories on poverty & the environment.
Join the discussion"Prior to 1988, I was a healthy, athletic physician
who played drums in a rock band. A year later, I was severely disabled
with Multiple Chemical Sensitivities," wrote Ann McCampbell, a member
of the board of the Multiple Chemical Sensitivities Foundation and
chair of the MCS Task Force of New Mexico, in Focus magazine. "The
onset was subtle, with slowly worsening food intolerances, progressing
to the point I could only eat three green vegetables. By then I was
also having severe reactions to inhaled substances and had developed
headaches, fatigue, heart palpitations, abdominal pains, and nausea.
Like so many others with MCS, I could no longer tolerate where I lived
and was forced to live outside in my yard, the car, or a makeshift
shelter."

Despite some improvements since then, "I go to few places outside my
home," she wrote, "in order to avoid exposures to cigarette smoke,
pesticides, perfume, vehicle exhaust, cleaning products, and other
toxic fumes which make me sicker."

McCampbell hasn't discovered what triggered her sensitivities, and her
baffling experience is typical of many others with MCS. The few
scientists studying the disease are baffled as well, struggling to
understand its etiology. Current theories range from a genetic
predisposition to chemical injury, to neurological damage, to
abnormalities in detoxifying enzymes, to a so-called "toxicant-induced
loss of tolerance" to environmental stressors, in which one particular
exposure to a toxic substance overwhelms a person's system and leaves
them unable to cope with exposures to a wide range of other toxins.

In fact, doctors have thus far failed to agree on a case definition
for the disease. That's created a catch-22: the lack of a definition
makes it more difficult to secure funding for MCS research, but more
research is needed to better understand and define (not to mention
treat and cure) the disease. "Right now, one of the things MCS
[researchers and patients] get hammered on is that there is no
agreed-upon case definition, despite the fact that three attempts have
been made to get the [Centers for Disease Control and Prevention] to
accept one," said Cynthia Wilson, executive director of the Chemical
Injury Information Network.

Other activists, like McCampbell, stress that there's a working
definition of MCS, and that the lack of a standardized case definition
shouldn't be used as an excuse to halt research or deny patients
crucial accommodations.

What few surveys have been conducted on the prevalence of the disease
in the U.S. paint a patchy picture, but hint that it may be relatively
widespread. A 1995 survey by the California Department of Health
Services found that 6 percent of state residents reported
doctor-diagnosed MCS, while a more recent survey of Atlanta, Ga., area
residents published in the May 2004 issue of the American Journal of
Public Health found that 3 percent of respondents reported receiving
an MCS diagnosis.


Home Is Where the Health Is

If those figures are at all representative of the nation as a whole,
the number of MCS sufferers could range from 9 million to 17 million.
Some of them are undoubtedly able to function with lifestyle
adaptations: removing carpet from their homes, filtering air and
water, using ultra-eco-friendly cleansers and personal-care products,
eating organic foods, and limiting contact with toxic substances like
pesticides and solvents. Other patients, however, are far more deeply
compromised by the disease.

For those in the latter group especially, the No. 1 issue is housing.
"Because of the nature of construction materials, it's very difficult
for people [with MCS] to find safe housing," says CIIN's Wilson. And
without safe refuge, it is all but impossible to live a relatively
symptom-free life.

Some people with severe MCS try to build or renovate from the ground
up, using exclusively nontoxic materials, but even under the best
financial circumstances this is no small feat. Moreover, people can
only exercise so much control over their surroundings -- there are
neighbors and property owners to worry about. "Even if [people with
MCS] find safe housing," says Wilson, "it doesn't mean it stays safe
housing. If, for example, a bug shows up, a landlord typically wants
to spray a pesticide, [rendering] the housing no good for someone with
MCS."

For many without a significant financial safety net, the quest for a
safe space is maddening -- and the first step on the road to economic
ruin. Susan Abod is a Santa Fe, N.M.-based vocal artist and filmmaker
with MCS whose latest film, Homesick, documents how people with MCS
are affected by their search for safe housing. The ability to cope
with the disease, she says, "has to do with access to finances and
resources. ... If you do have money, you can always find another home,
and you can refurbish it with safe products. But those of us who don't
have access to a lot of money or who are renters or who have assisted
housing from the government [face] a lot more limits."


Extreme Makeover: Home Edition.
Photo: iStockphoto.CIIN's Wilson concurs. "For lower-income people who
do not have the wherewithal to move or to find safe housing, it is a
big problem," she says. "Most people with MCS end up living in their
cars." Others wind up in a friend's backyard, a stripped-down RV, or a
canvas tent on public land. For that reason, the housing problem gets
worse in winter, says Wilson, "because people can't just go camping,
can't solve their problems by living outdoors."

Nor can they take advantage of traditional safety nets for the
homeless. People with MCS "have to stay away from most chemicals that
are on people's clothes, on people's bodies, and in buildings," says
Rhonda Zwillinger, an artist and photographer who spent close to a
decade interviewing and photographing some 250 people with MCS for The
Dispossessed Project, a powerful ongoing photo essay. (That project
was compiled into a book called The Dispossessed: Living With Multiple
Chemical Sensitivities.)

"[The MCS homeless] are mostly not living in urban areas, they're
mostly trying to live in rural areas where the air is cleaner and the
water is cleaner, and that becomes a problem because the services [for
the homeless] are less available in rural areas," says Zwillinger.
"And they can't go into shelters the way the [non-MCS] homeless can,"
because in a busy building they would likely encounter any number of
chemicals their bodies can't handle.

It can be even more difficult finding an MCS-safe job. Even if a
workplace itself is a tolerable environment (rare, given the ubiquity
of toxic building materials), basic job-related interactions with the
general public can be impossible. "The way a typical story goes," says
Zwillinger, "is that people lose the ability to make a living because
they can't be out in the public arena" without getting ill. Some MCS
patients find a way to work from home (assuming they've found safe
housing) -- but that option is seldom available to poorer Americans
forced to rely on low-wage, low-skill jobs.

"Almost all of us have to make severe accommodations to [MCS], and it
does take a lot of money to successfully do that with any kind of
grace," said Wilson. "Most people find themselves one day employed and
the next day unemployable. The financial upheaval that this illness
causes is heartbreaking."


I Know Why the Caged Bird Stopped Singing

Even chemical companies no longer deny that chemicals accumulate in
our bodies simply by virtue of being alive today. But they insist that
the concentrations are too low to cause any harm. For MCS sufferers,
at least, that reassurance rings brutally hollow.

A well-publicized 2003 study by the Environmental Working Group and
Mount Sinai Hospital in New York found "an average of 91 industrial
compounds, pollutants, and other chemicals in the blood and urine of
nine volunteers." Out of the 210 substances tested for, 167 showed up
in at least one of the volunteers. Meanwhile, the Centers for Disease
Control and Prevention's latest National Report on Human Exposure to
Environmental Chemicals contains a detailed breakdown of 148 different
chemicals and substances found in a representative sample of the U.S.
population -- from organochlorine pesticides to dioxins to metals like
cadmium.

Spend your $.02
Discuss this story.Very little is known about how individual chemicals
affect the human body, let alone the potential cumulative effects of
dozens or hundreds of interacting chemicals. There are over 80,000
chemicals registered for use in the United States, with up to 2,500
new ones reviewed by the U.S. EPA every year, and government oversight
is minimal when there's any at all. Manufacturers are responsible for
safety-testing their own products, and they have no incentive to look
for potential problems -- quite the contrary.

The lack of chemical regulation in the U.S. is perhaps most glaring in
the case of cosmetics and personal-care products, which, given their
ubiquity, are subject to shockingly lax oversight. The Food and Drug
Administration has nominal authority over them, but little actual
regulatory power. Makers of lotions and potions aren't required to
file information on ingredients with the government, or report
cosmetic-related injuries. The FDA can't mandate safety studies of
cosmetics, and doesn't even have the power to order product recalls.

"An average adult is exposed to over 100 unique chemicals in
personal-care products every day," says Jane Houlihan, vice president
for research at the Environmental Working Group. "These exposures add
up." EWG has been sounding the alarm on carcinogenic or otherwise
worrisome cosmetic ingredients, and has built an interactive database
that ranks shampoos, deodorants, and other products on their potential
harmfulness.

The ubiquity of cosmetics is just one reason people with MCS remain
segregated from society, though there have been some advancements on
this front in recent years. Some workplaces and schools (like The
Evergreen State College in Olympia, Wash.) have instituted
no-fragrance policies -- but in general, those with MCS cannot count
on much help or protection from employers, landlords, the government,
or the medical establishment.

It's a bitter irony, since many with MCS see themselves as canaries in
the modern-day coal mine. As recently as 1986, the exquisitely
sensitive yellow birds were used to detect the presence of dangerous
gases in mine shafts, and when they showed signs of illness -- when
they ceased to sing -- it was an unambiguous warning: evacuate.

As growing numbers of MCS sufferers are driven from their homes and
jobs, pushed to the fringes of medical science and the brink of
financial ruin, made sick by industrialized civilization itself, we
would do well to heed their equally urgent warning. And fast, because
this time around we can't evacuate. There's nowhere else to go.


- - - - - - - - - -

Todd Hymas is Grist's editorial assistant. He's had Multiple Chemical
Sensitivities since 1998.


~~~~

Note from Ilena Rosenthal:
The most rabid and deceitful Chemical Industry hack, Stephen Barrett,
has led campaigns for years against fine scientists and doctors
looking to help the many like Todd who suffer from MCS.

This unlicensed for over a decade, so called 'psychiatrist' never was
able to pass the psychiatric board certification ... and has written
many deceitful articles on MCS for ACSH.org ... long funded by the
chemical industry.

Thousands of women with breast implants are affected by MCS ... and
many of their physicians have been ravaged by this maniac.

This is just one:

www.BreastImplantAwareness.org/sinaiko.htm

Thankfully ... after years and years .. Dr. Sinaiko prevailed at huge
cost and loss of years of helping patients.

~~~~~~~~~~~~~~~~~~~

Unlike the scientists he harasses and attempts to destroy through
bogus investigations and attempts at their licenses ... Barrett
totally and utterly refuses to disclose on his MCS rants that the
chemical industry funds those who pay him ...

He has a team of idiots like Nanaweedkiller and disbarred and shamed
attorney Mark S Probert to back his campaign from hell.

www.BreastImplantAwareness.org/QuackWatchWatch.htm

Rich
July 17th 06, 03:41 PM
A curious observation about Multiple Chemical Sensitivity.

Did you ever notice that the "chemicals" that the MCS folks are "sensitive"
to are ALWAYS things that one can SMELL. Even though many thousands of
chemicals in the environment are odorless, those never bother the MCS crowd.
Instead, they are sensitive to perfumes, scented cleaning solutions, and
other stuff that you can SMELL. Now doesn't that suggest a psychological
origin of the "disease"?
--


--Rich

Recommended websites:

http://www.ratbags.com/rsoles
http://www.acahf.org.au
http://www.quackwatch.org/
http://www.skeptic.com/
http://www.csicop.org/

Coleah
July 17th 06, 04:21 PM
"Rich" > wrote in message
...
>
>
> A curious observation about Multiple Chemical Sensitivity.
>
> Did you ever notice that the "chemicals" that the MCS folks are
"sensitive"
> to are ALWAYS things that one can SMELL. Even though many thousands of
> chemicals in the environment are odorless, those never bother the MCS
crowd.
> Instead, they are sensitive to perfumes, scented cleaning solutions, and
> other stuff that you can SMELL. Now doesn't that suggest a psychological
> origin of the "disease"?
> --
>
>
> --Rich

Just 'smelling' and not liking it is one thing.
Smelling and actually having a physical reaction is another. For myself
when I worked near an airport, I could smell jet fuel and it would toss me
into an asthma attack. There were other 'chemicals' that made it hard for
me to breath around too...so, I figured that was a 'sensitivity' to multiple
chemicals. I found that by staying away from these chemicals (jet fuel,
perfume, smoke, printer ink, etc) I could enjoy life without asthma attacks.
Ventilation is an important factor.

I don't feel like an obsessive wacko about MCS and don't mean to beat the
drum for the cause. I do think that logically if one can identify the
things that bother them, identify their reaction when exposed vs not
exposed, then it is a simple matter of staying away. I never thought it was
any one chemicals 'fault', but more of a circumstantial and personal makeup
issue.

Ilena Rose
July 17th 06, 04:36 PM
http://allergies.about.com/cs/mcs/a/aa012599.htm

Multiple Chemical Sensitivity (MCS): The Afflicted
From Judy Tidwell,
Your Guide to Allergies.
FREE Newsletter. Sign Up Now!


People With Allergies Are More Susceptible to Chemicals
Those who are afflicted with Multiple Chemical Sensitivity (MCS)
suffer from a multitude of ailments, that have very real consequences.
MCS is a worldwide illness that can affect anyone, and most who suffer
from this disorder were healthy before becoming ill. Some believe that
children, the elderly, and people with allergic illnesses seem to be
more susceptible to chemicals than the average person. Some people can
be genetically susceptible also.


More women than men are affected by this illness. It is believed that
since men produce Testosterone, it often covers up the symptoms and
warning signs until it is too late. Women produce Estrogen which does
not cover up the symptoms.


There is also the theory that because women use more toxic products
from cosmetics to household cleaners than men, they are more
susceptible.


Those most likely to be associated with MCS are industrial workers,
"sick building" occupants, those living in chemically contaminated
communities, Gulf War veterans, and women with silicone breast
implants.


Half of those with MCS also suffer with traditional (IgE) allergies,
in other words, they can also be susceptible to food, mold, or dust
allergies.


Causes & Triggers
Clinical Ecologists believe that repeated small exposures or one large
high exposure to chemical agents over time can lead to the body losing
its ability to detox. This can sensitize people and cause their immune
systems to malfunction. Once the body's ability to process toxins is
damaged, the person may be more susceptible to chemicals that never
caused a problem before.


The body's detox processes can be impaired by other means besides
chemical agents. Some other causes of MCS include viruses, severe
emotional or physical trauma (especially in childhood), liver damage,
or metabolism disorders. Some people with MCS may have a genetic
disorder of the enzyme pathways (porphyria), which may not manifest
until triggered by a chemical exposure.


Multiple Chemical Sensitivity can be triggered by a multitude of
chemicals. Mostly petrochemicals, they can be found in pesticides,
herbicides, perfumes, fragrances, paints, wood treatments, glues,
carpets, furniture, shampoo, soap, detergents, cleaners, plastics,
solvents, markers, raw fuels, engine exhaust, alcohol, medications,
caffeine and food additives to name a few. Pollution can also play a
part in this disorder.


Symptoms
The symptoms of MCS can be similar to those of traditional allergies,
such as headaches, migraines, dizziness, nausea, anaphylactic shock,
breathing difficulty, rashes and other skin eruptions. Of course,
there can be other symptoms such as acute abdominal pain, prolonged
fatigue, insomnia, neurological signs, loss of concentration, memory
loss, body aches and pains, and even progressive coordination
impairment. Keep in mind this is not an all inclusive list.


Treatment
Multiple Chemical Sensitivity is difficult for physicians to diagnose
because there is no single set of symptoms which fit together as a
syndrome. There is also not one diagnostic test that will detect every
manifestation of the disorder.


Physicians must become detectives to sort out a patient's medical
history and pay attention to the patient's environmental or
occupational exposures in order to correctly diagnose MCS.


As with allergies, avoidance is the key in treating MCS. As with its
symptoms, treatment varies with the individual afflicted.


It may be helpful to use an air purifying system. The American
Environmental Health Foundation suggests the food you eat, and the
personal care products you use may contain offensive chemicals. Be
careful what you purchase and read the labels.


~~~~~~~~~~


www.humanticsfoundation.com/QuackbustersVsIlena.htm#MCS
What the chemical cartel backed Quackbusters want to do with those
working to figure out this complex issue

Jan Drew
July 17th 06, 08:18 PM
Thanks, IIena.

Sad that we have Quack Barrett's shills here. Repeating his garbage.
Proclaimed nurse makes fun of MCS.

Sad that.

"Ilena Rose" > wrote in message
...
>
>
>
>
>
> http://www.grist.org/news/maindish/2006/03/17/hymas/index.html
> By Todd Hymas
> 17 Mar 2006
> Consider the trappings of modern life: Calvin Klein Eternity,
> gasoline, Gore-Tex, Aveda hairspray, paint, particle board,
> polyurethane iPod cases.
>
>
> Is this the face of the future?
> Photo: iStockphoto.Now imagine that you're allergic to virtually all
> of them.
>
> Environmentalists usually think about chemical toxicity as either a
> dramatic local crisis (Bhopal, Love Canal) or the simmering concern of
> those far away (breast-feeding mothers in the Arctic) or far in the
> future (our oft-evoked grandchildren). But for people suffering from
> Multiple Chemical Sensitivities, the chemical crisis is already here.
> Indeed, thanks to industrialization, it is already everywhere. And,
> like so many environment-related health issues, it disproportionately
> affects the poor -- and, moreover, drives many once financially stable
> people into poverty.
>
> As a disease, Multiple Chemical Sensitivities doesn't have an official
> case definition yet (more on this soon), but rather refers to a broad
> range of adverse symptoms brought on by an even more broad array of
> everyday chemicals. These symptoms are often provoked at exposure
> levels far below those that seem to affect the rest of the population
> -- levels virtually always present in our homes, workplaces, and
> social venues. They commonly include severe headaches, food
> intolerances, difficulty breathing, nausea, irritation of the eyes,
> ears, nose, throat, and skin, and disorientation or confusion, but
> there are many more.
>
> The best information currently available suggests that MCS is a
> chronic condition with no cure. Although some treatments (such as
> acupuncture) seem to help some patients, recent surveys by the
> Chemical Injury Information Network, a nonprofit education and
> advocacy organization for people with chemical sensitivities, found
> that avoidance of problem chemicals was the only consistently
> effective treatment.
>
> If only avoidance were as simple as it sounds. Just as modern life
> almost inevitably involves contributing greenhouse gases to the
> heating atmosphere, it is all but impossible to navigate the
> industrialized world without being immersed in tens of thousands of
> potentially troublesome human-made chemicals. And just as an honest
> fight against global warming would pose a huge threat to powerful
> energy companies, a real effort to take MCS seriously could throw a
> wrench into the operations of a huge range of industries that produce
> chemicals and chemical-laden products.
>
>
> Research and You May Not Find
>
> Mainstream medicine has been slow to recognize the role environment
> can play in disease. With many doctors either unaware of MCS or
> doubtful it's a real condition, simply getting diagnosed is a battle.
> Even those who recognize the disease are often unfamiliar with
> treatment options. As a result, MCS patients frequently must visit
> multiple health-care practitioners -- a process that is both
> emotionally and financially costly -- before they can put a name to
> their illness and make the necessary (and often radical and pricey)
> lifestyle adaptations it requires.
>
>
> Introduction to the series.
> How environmentalism got its elitist tinge.
> Photos of Louisiana towns battered by Katrina.
> A look at the poultry farms ravaging the South.
> How coal mining has scarred the hills of Appalachia.
> A virtual walking tour of the polluted South Bronx.
> More stories on poverty & the environment.
> Join the discussion"Prior to 1988, I was a healthy, athletic physician
> who played drums in a rock band. A year later, I was severely disabled
> with Multiple Chemical Sensitivities," wrote Ann McCampbell, a member
> of the board of the Multiple Chemical Sensitivities Foundation and
> chair of the MCS Task Force of New Mexico, in Focus magazine. "The
> onset was subtle, with slowly worsening food intolerances, progressing
> to the point I could only eat three green vegetables. By then I was
> also having severe reactions to inhaled substances and had developed
> headaches, fatigue, heart palpitations, abdominal pains, and nausea.
> Like so many others with MCS, I could no longer tolerate where I lived
> and was forced to live outside in my yard, the car, or a makeshift
> shelter."
>
> Despite some improvements since then, "I go to few places outside my
> home," she wrote, "in order to avoid exposures to cigarette smoke,
> pesticides, perfume, vehicle exhaust, cleaning products, and other
> toxic fumes which make me sicker."
>
> McCampbell hasn't discovered what triggered her sensitivities, and her
> baffling experience is typical of many others with MCS. The few
> scientists studying the disease are baffled as well, struggling to
> understand its etiology. Current theories range from a genetic
> predisposition to chemical injury, to neurological damage, to
> abnormalities in detoxifying enzymes, to a so-called "toxicant-induced
> loss of tolerance" to environmental stressors, in which one particular
> exposure to a toxic substance overwhelms a person's system and leaves
> them unable to cope with exposures to a wide range of other toxins.
>
> In fact, doctors have thus far failed to agree on a case definition
> for the disease. That's created a catch-22: the lack of a definition
> makes it more difficult to secure funding for MCS research, but more
> research is needed to better understand and define (not to mention
> treat and cure) the disease. "Right now, one of the things MCS
> [researchers and patients] get hammered on is that there is no
> agreed-upon case definition, despite the fact that three attempts have
> been made to get the [Centers for Disease Control and Prevention] to
> accept one," said Cynthia Wilson, executive director of the Chemical
> Injury Information Network.
>
> Other activists, like McCampbell, stress that there's a working
> definition of MCS, and that the lack of a standardized case definition
> shouldn't be used as an excuse to halt research or deny patients
> crucial accommodations.
>
> What few surveys have been conducted on the prevalence of the disease
> in the U.S. paint a patchy picture, but hint that it may be relatively
> widespread. A 1995 survey by the California Department of Health
> Services found that 6 percent of state residents reported
> doctor-diagnosed MCS, while a more recent survey of Atlanta, Ga., area
> residents published in the May 2004 issue of the American Journal of
> Public Health found that 3 percent of respondents reported receiving
> an MCS diagnosis.
>
>
> Home Is Where the Health Is
>
> If those figures are at all representative of the nation as a whole,
> the number of MCS sufferers could range from 9 million to 17 million.
> Some of them are undoubtedly able to function with lifestyle
> adaptations: removing carpet from their homes, filtering air and
> water, using ultra-eco-friendly cleansers and personal-care products,
> eating organic foods, and limiting contact with toxic substances like
> pesticides and solvents. Other patients, however, are far more deeply
> compromised by the disease.
>
> For those in the latter group especially, the No. 1 issue is housing.
> "Because of the nature of construction materials, it's very difficult
> for people [with MCS] to find safe housing," says CIIN's Wilson. And
> without safe refuge, it is all but impossible to live a relatively
> symptom-free life.
>
> Some people with severe MCS try to build or renovate from the ground
> up, using exclusively nontoxic materials, but even under the best
> financial circumstances this is no small feat. Moreover, people can
> only exercise so much control over their surroundings -- there are
> neighbors and property owners to worry about. "Even if [people with
> MCS] find safe housing," says Wilson, "it doesn't mean it stays safe
> housing. If, for example, a bug shows up, a landlord typically wants
> to spray a pesticide, [rendering] the housing no good for someone with
> MCS."
>
> For many without a significant financial safety net, the quest for a
> safe space is maddening -- and the first step on the road to economic
> ruin. Susan Abod is a Santa Fe, N.M.-based vocal artist and filmmaker
> with MCS whose latest film, Homesick, documents how people with MCS
> are affected by their search for safe housing. The ability to cope
> with the disease, she says, "has to do with access to finances and
> resources. ... If you do have money, you can always find another home,
> and you can refurbish it with safe products. But those of us who don't
> have access to a lot of money or who are renters or who have assisted
> housing from the government [face] a lot more limits."
>
>
> Extreme Makeover: Home Edition.
> Photo: iStockphoto.CIIN's Wilson concurs. "For lower-income people who
> do not have the wherewithal to move or to find safe housing, it is a
> big problem," she says. "Most people with MCS end up living in their
> cars." Others wind up in a friend's backyard, a stripped-down RV, or a
> canvas tent on public land. For that reason, the housing problem gets
> worse in winter, says Wilson, "because people can't just go camping,
> can't solve their problems by living outdoors."
>
> Nor can they take advantage of traditional safety nets for the
> homeless. People with MCS "have to stay away from most chemicals that
> are on people's clothes, on people's bodies, and in buildings," says
> Rhonda Zwillinger, an artist and photographer who spent close to a
> decade interviewing and photographing some 250 people with MCS for The
> Dispossessed Project, a powerful ongoing photo essay. (That project
> was compiled into a book called The Dispossessed: Living With Multiple
> Chemical Sensitivities.)
>
> "[The MCS homeless] are mostly not living in urban areas, they're
> mostly trying to live in rural areas where the air is cleaner and the
> water is cleaner, and that becomes a problem because the services [for
> the homeless] are less available in rural areas," says Zwillinger.
> "And they can't go into shelters the way the [non-MCS] homeless can,"
> because in a busy building they would likely encounter any number of
> chemicals their bodies can't handle.
>
> It can be even more difficult finding an MCS-safe job. Even if a
> workplace itself is a tolerable environment (rare, given the ubiquity
> of toxic building materials), basic job-related interactions with the
> general public can be impossible. "The way a typical story goes," says
> Zwillinger, "is that people lose the ability to make a living because
> they can't be out in the public arena" without getting ill. Some MCS
> patients find a way to work from home (assuming they've found safe
> housing) -- but that option is seldom available to poorer Americans
> forced to rely on low-wage, low-skill jobs.
>
> "Almost all of us have to make severe accommodations to [MCS], and it
> does take a lot of money to successfully do that with any kind of
> grace," said Wilson. "Most people find themselves one day employed and
> the next day unemployable. The financial upheaval that this illness
> causes is heartbreaking."
>
>
> I Know Why the Caged Bird Stopped Singing
>
> Even chemical companies no longer deny that chemicals accumulate in
> our bodies simply by virtue of being alive today. But they insist that
> the concentrations are too low to cause any harm. For MCS sufferers,
> at least, that reassurance rings brutally hollow.
>
> A well-publicized 2003 study by the Environmental Working Group and
> Mount Sinai Hospital in New York found "an average of 91 industrial
> compounds, pollutants, and other chemicals in the blood and urine of
> nine volunteers." Out of the 210 substances tested for, 167 showed up
> in at least one of the volunteers. Meanwhile, the Centers for Disease
> Control and Prevention's latest National Report on Human Exposure to
> Environmental Chemicals contains a detailed breakdown of 148 different
> chemicals and substances found in a representative sample of the U.S.
> population -- from organochlorine pesticides to dioxins to metals like
> cadmium.
>
> Spend your $.02
> Discuss this story.Very little is known about how individual chemicals
> affect the human body, let alone the potential cumulative effects of
> dozens or hundreds of interacting chemicals. There are over 80,000
> chemicals registered for use in the United States, with up to 2,500
> new ones reviewed by the U.S. EPA every year, and government oversight
> is minimal when there's any at all. Manufacturers are responsible for
> safety-testing their own products, and they have no incentive to look
> for potential problems -- quite the contrary.
>
> The lack of chemical regulation in the U.S. is perhaps most glaring in
> the case of cosmetics and personal-care products, which, given their
> ubiquity, are subject to shockingly lax oversight. The Food and Drug
> Administration has nominal authority over them, but little actual
> regulatory power. Makers of lotions and potions aren't required to
> file information on ingredients with the government, or report
> cosmetic-related injuries. The FDA can't mandate safety studies of
> cosmetics, and doesn't even have the power to order product recalls.
>
> "An average adult is exposed to over 100 unique chemicals in
> personal-care products every day," says Jane Houlihan, vice president
> for research at the Environmental Working Group. "These exposures add
> up." EWG has been sounding the alarm on carcinogenic or otherwise
> worrisome cosmetic ingredients, and has built an interactive database
> that ranks shampoos, deodorants, and other products on their potential
> harmfulness.
>
> The ubiquity of cosmetics is just one reason people with MCS remain
> segregated from society, though there have been some advancements on
> this front in recent years. Some workplaces and schools (like The
> Evergreen State College in Olympia, Wash.) have instituted
> no-fragrance policies -- but in general, those with MCS cannot count
> on much help or protection from employers, landlords, the government,
> or the medical establishment.
>
> It's a bitter irony, since many with MCS see themselves as canaries in
> the modern-day coal mine. As recently as 1986, the exquisitely
> sensitive yellow birds were used to detect the presence of dangerous
> gases in mine shafts, and when they showed signs of illness -- when
> they ceased to sing -- it was an unambiguous warning: evacuate.
>
> As growing numbers of MCS sufferers are driven from their homes and
> jobs, pushed to the fringes of medical science and the brink of
> financial ruin, made sick by industrialized civilization itself, we
> would do well to heed their equally urgent warning. And fast, because
> this time around we can't evacuate. There's nowhere else to go.
>
>
> - - - - - - - - - -
>
> Todd Hymas is Grist's editorial assistant. He's had Multiple Chemical
> Sensitivities since 1998.
>
>
> ~~~~
>
> Note from Ilena Rosenthal:
> The most rabid and deceitful Chemical Industry hack, Stephen Barrett,
> has led campaigns for years against fine scientists and doctors
> looking to help the many like Todd who suffer from MCS.
>
> This unlicensed for over a decade, so called 'psychiatrist' never was
> able to pass the psychiatric board certification ... and has written
> many deceitful articles on MCS for ACSH.org ... long funded by the
> chemical industry.
>
> Thousands of women with breast implants are affected by MCS ... and
> many of their physicians have been ravaged by this maniac.
>
> This is just one:
>
> www.BreastImplantAwareness.org/sinaiko.htm
>
> Thankfully ... after years and years .. Dr. Sinaiko prevailed at huge
> cost and loss of years of helping patients.
>
> ~~~~~~~~~~~~~~~~~~~
>
> Unlike the scientists he harasses and attempts to destroy through
> bogus investigations and attempts at their licenses ... Barrett
> totally and utterly refuses to disclose on his MCS rants that the
> chemical industry funds those who pay him ...
>
> He has a team of idiots like Nanaweedkiller and disbarred and shamed
> attorney Mark S Probert to back his campaign from hell.
>
> www.BreastImplantAwareness.org/QuackWatchWatch.htm

Mark Thorson
July 17th 06, 08:35 PM
Ann Allergy 1993 Dec;71(6):538-46
Adult sequelae of childhood abuse presenting as
environmental illness.
Staudenmayer H, Selner ME, Selner JC.
Allergy Respiratory Institute of Colorado, Denver 80222.

Sixty-three patients with polysomatic complaints
attributed to sensitivity to environmental
chemicals had detailed clinical assessments and
diagnostic psychologic evaluations. Objective
medical parameters failed to substantiate their
beliefs that multiple chemicals were the cause of
their problems. A group of 64 patients with chronic
medical conditions and defined psychologic
disorders not attributed to chemical exposure
served as controls. Approximately half the patients
in each group underwent long-term psychotherapy,
and in these patients, the prevalence of
physical and sexual childhood abuse was significantly
higher (P < .05) among the cohort of
women who attributed their symptoms to environmental
or chemically related illness. These data
suggest that somatization may reflect sequelae of
childhood abuse and may play an important role
in the illness experienced by women who believe
they are sensitive to environmental chemicals.

Mark Thorson
July 17th 06, 08:35 PM
Med Hypotheses. 2003 Oct;61(4):419-30.
Are syndromes in environmental medicine variants
of somatoform disorders?
Wiesmuller GA, Ebel H, Hornberg C, Kwan O, Friel J.
Institute of Hygiene and Environmental Medicine,
University Hospital Aachen, Aachen, Germany.

To date, relatively little is known about the
etiology, pathophysiology, diagnosis, therapy,
prevention and prognosis of environment-related
syndromes like multiple chemical sensitivity
(MCS), idiopathic environmental intolerance (IEI),
sick building syndrome (SBS), chronic fatigue
syndrome (CFS), candida syndrome (CS) and
burnout syndrome (BS). Part of the reason is that
these syndromes have not been clearly defined
and classified in scientific categories distinct from
each other, and that they show clinical similarities
to classified somatoform disorders.
Furthermore, there are at least three possible
explanations for the existence of these syndromes:
(1) The syndromes may result from the interaction
of environmental factors, individual
susceptibility and psychological factors (i.e., how
they are perceived and seen by the patient); (2)
they may reflect socially and culturally accepted
methods of expressing distress; and/or (3) they
may be iatrogenic. Despite all the uncertainties
in evaluation of environmental syndromes,
physicians have the duty to take the affected
person's problems seriously. A comprehensive
systematic classification which better accounts
for these complex clinical manifestations is long
overdue. Until these syndromes are well defined,
the terms used for them should definitely not be
applied to connote a specific disease process.

Mark Thorson
July 17th 06, 08:35 PM
Psychol Med 2002 Nov;32(8):1387-94
Psychiatric and somatic disorders and multiple
chemical sensitivity (MCS) in 264 'environmental
patients'.
Bornschein S, Hausteiner C, Zilker T, Forstl H.
Psychiatric Clinic and Department of Toxicology,
I, Medical Clinic, Technical University of
Munich, Germany.

BACKGROUND: An increasing number of
individuals with diverse health complaints are
currently seeking help in the field of environmental
medicine. Multiple chemical sensitivity (MCS)
or idiopathic environmental intolerances (IEI)
is defined as an acquired disorder with multiple
recurrent symptoms associated with environmental
chemicals in low concentrations that are well
tolerated by the majority of people. Their symptoms
are not explained by any known psychiatric
or somatic disorder.

METHOD: Within a 2-year period we
examined 264 of 267 consecutive
patients prospectively presenting to a university
based out-patient department for environmental
medicine. Patients underwent routine medical
examination, toxicological analysis and the
structured clinical interview for DSM-IV
psychiatric disorders (SCID).

RESULTS: Seventy-five per cent of the patients
met DSM-IV criteria for at least one psychiatric
disorder and 35% of all patients suffered from
somatoform disorders. Other frequent diagnoses
were affective and anxiety disorders, and
dependence or substance abuse. In 39%
a psychiatric disorder, in 23% a somatic
condition and in 19% a combination of the two
were considered to provide sufficient
explanation of the symptoms. Toxic chemicals
were regarded as the most probable cause in only
five cases. The suspected diagnosis of MCS/IEI
could not be sustained in the vast majority of cases.

CONCLUSION: This investigation confirms
previous findings that psychiatric morbidity is
high in patients presenting to specialized centres
for environmental medicine. Somatoform
disorders are the leading diagnostic category,
and there is reason to believe that certain
'environmental' or MCS patients form a special
subgroup of somatoform disorders. In most
cases, symptoms can be explained by well-defined
psychiatric and medical conditions other than
MCS, which need specific treatment. Further
studies should focus on provocation testing in order
to find positive criteria for MCS and on therapeutic
approaches that consider psychiatric aspects.

Mark Thorson
July 17th 06, 08:36 PM
Psychol Med 1999 Mar;29(2):399-406
The association of sexual and physical abuse with somatization:
characteristics of patients presenting with irritable bowel syndrome
and non-epileptic attack disorder.
Reilly J, Baker GA, Rhodes J, Salmon P.
Department of Clinical Psychology, University of Liverpool.

BACKGROUND: Physical symptoms are
commonly presented for treatment in the absence of
physical pathology. This study tests predictions
arising from the theory that childhood sexual
abuse leads to emotional distress, illness orientation
and social dysfunction as adults and that one
or more of these effects, in turn, leads to presentation
of functional (i.e. unexplained) symptoms.

METHODS: Two groups of patients with physical
symptoms in the absence of organic disease
(non-epileptic attack disorder or irritable bowel
syndrome) were contrasted with organically
diseased groups with comparable symptoms
(epilepsy and Crohn's disease, respectively).

RESULTS: Despite their contrasting clinical presentation,
irritable bowel and non-epileptic attack
groups were similar in recalling more sexual and
physical abuse, as both children and adults, than
their comparison groups. They were also similar
in being more emotionally and socially disturbed
and illness-orientated, but these putative mediating
variables could not account for the relationship
of abuse with presentation of functional symptoms.

CONCLUSIONS: Adults presenting
functional neurological and abdominal symptoms
are characterized by history of abuse. The
current focus on childhood sexual abuse should
be broadened to include sexual, and particularly
physical, abuse in adulthood as well as childhood.
The intervening processes that link abuse to
somatization remain to be identified but are
unlikely to include adult emotional and social
disturbance or general illness-orientation.

Mark Thorson
July 17th 06, 08:36 PM
Regul Toxicol Pharmacol 1996 Aug;24(1 Pt 2):S96-110
Clinical consequences of the EI/MCS "diagnosis": two paths.
Staudenmayer H.
Allergy Respiratory Institute of Colorado, Denver, USA.

There are two distinct paths down which patients
"diagnosed" with environmental illness/multiple
chemical sensitivities (EI/MCS) can travel. Along
the first path, beliefs about low-level, multiple
chemical sensitivities as the cause of physical
and psychological symptoms are instilled and
reinforced by a host of factors including toxicogenic
speculation, iatrogenic influence mediated by
unsubstantiated diagnostic and treatment practices,
patient support/advocacy networks, and
social contagion. Intrapsychic factors also reinforce
this path through the motivational mechanism
of factitious malingering, or unconscious
primary and secondary gain, mediated through
psychological defenses, particularly projection
of cause of illness onto the physical environment.
The second path involves restructuring distorted
beliefs about chemical sensitivities. Explanations
of the placebo effect, the physiology of the stress
response, and the symptoms of anxiety and
panic facilitate the direction of EI/MCS patients
onto this path. A decision model is presented to
discriminate among toxicogenic and psychogenic
explanations of the EI/MCS phenomenon,
based on appraisal of reaction and physiologic
and cognitive responses during provocation
chamber challenges under double-blind, placebo-
controlled conditions. These studies have been
helpful therapeutically for some patients in selecting
the path that leads to wellness. This paper
suggests how various therapeutic techniques
can be employed with difficult patients. Often,
supportive psychotherapy establishes a therapeutic
alliance which facilitates cognitive therapy to
restructure distorted beliefs. In the process of
finding alternative explanations to chemical
sensitivities, the etiology of symptoms is related
to stressful life events, including childhood
experiences which may have disrupted normal
personality development and coping capacity.
Furthermore, biological and physiological sequelae
stemming from early, chronic trauma have
been identified which could explain many of
the multisystem complaints. The incidence of
childhood abuse reported by EI/MCS patients
is strikingly high, and it is recollection of trauma
that many EI/MCS patients avoid by displacing
the psychologic and physiologic adults sequelae
onto the physical environment. The reenactment
of these experiences may be necessary in the
therapy of some affected individuals. Despite
the significant therapeutic effort expanded, some
patients who are imprisoned by a closed belief
system about the harmful effects of chemical
sensitivities are resigned to travel down the path
which ultimately leads to despair and depression,
social isolation, and even death.

Ilena Rose
July 17th 06, 08:42 PM
http://allergies.about.com/cs/mcs/a/aa012599.htm

Multiple Chemical Sensitivity (MCS): The Afflicted
From Judy Tidwell,
Your Guide to Allergies.
FREE Newsletter. Sign Up Now!


People With Allergies Are More Susceptible to Chemicals
Those who are afflicted with Multiple Chemical Sensitivity (MCS)
suffer from a multitude of ailments, that have very real consequences.
MCS is a worldwide illness that can affect anyone, and most who suffer
from this disorder were healthy before becoming ill. Some believe that
children, the elderly, and people with allergic illnesses seem to be
more susceptible to chemicals than the average person. Some people can
be genetically susceptible also.


More women than men are affected by this illness. It is believed that
since men produce Testosterone, it often covers up the symptoms and
warning signs until it is too late. Women produce Estrogen which does
not cover up the symptoms.


There is also the theory that because women use more toxic products
from cosmetics to household cleaners than men, they are more
susceptible.


Those most likely to be associated with MCS are industrial workers,
"sick building" occupants, those living in chemically contaminated
communities, Gulf War veterans, and women with silicone breast
implants.


Half of those with MCS also suffer with traditional (IgE) allergies,
in other words, they can also be susceptible to food, mold, or dust
allergies.


Causes & Triggers
Clinical Ecologists believe that repeated small exposures or one large
high exposure to chemical agents over time can lead to the body losing
its ability to detox. This can sensitize people and cause their immune
systems to malfunction. Once the body's ability to process toxins is
damaged, the person may be more susceptible to chemicals that never
caused a problem before.


The body's detox processes can be impaired by other means besides
chemical agents. Some other causes of MCS include viruses, severe
emotional or physical trauma (especially in childhood), liver damage,
or metabolism disorders. Some people with MCS may have a genetic
disorder of the enzyme pathways (porphyria), which may not manifest
until triggered by a chemical exposure.


Multiple Chemical Sensitivity can be triggered by a multitude of
chemicals. Mostly petrochemicals, they can be found in pesticides,
herbicides, perfumes, fragrances, paints, wood treatments, glues,
carpets, furniture, shampoo, soap, detergents, cleaners, plastics,
solvents, markers, raw fuels, engine exhaust, alcohol, medications,
caffeine and food additives to name a few. Pollution can also play a
part in this disorder.


Symptoms
The symptoms of MCS can be similar to those of traditional allergies,
such as headaches, migraines, dizziness, nausea, anaphylactic shock,
breathing difficulty, rashes and other skin eruptions. Of course,
there can be other symptoms such as acute abdominal pain, prolonged
fatigue, insomnia, neurological signs, loss of concentration, memory
loss, body aches and pains, and even progressive coordination
impairment. Keep in mind this is not an all inclusive list.


Treatment
Multiple Chemical Sensitivity is difficult for physicians to diagnose
because there is no single set of symptoms which fit together as a
syndrome. There is also not one diagnostic test that will detect every
manifestation of the disorder.


Physicians must become detectives to sort out a patient's medical
history and pay attention to the patient's environmental or
occupational exposures in order to correctly diagnose MCS.


As with allergies, avoidance is the key in treating MCS. As with its
symptoms, treatment varies with the individual afflicted.


It may be helpful to use an air purifying system. The American
Environmental Health Foundation suggests the food you eat, and the
personal care products you use may contain offensive chemicals. Be
careful what you purchase and read the labels.


~~~~~~~~~~


www.humanticsfoundation.com/QuackbustersVsIlena.htm#MCS
What the chemical cartel backed Quackbusters want to do with those
working to figure out this complex issue