If this is your first visit, be sure to check out the FAQ by clicking the link above. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. |
|
|
Thread Tools | Display Modes |
#1
|
|||
|
|||
Possible duplex kidney at 32 week ultrasound...
Hi all,
I haven't posted in a few months (was out of town working and didn't have much Internet access). But now I'm back and catching up on everything I missed while I was gone. Congrats to everyone who's given birth over the summer and to those who've announced pregnancies, too! Anyway, the main reason I'm posting now is for some support, advice, or whatever if anyone else has had experience with this....Sorry it's a bit long-winded. Back at my routine 18 week ultrasound in May, the doctor noticed that one of my baby's kidneys was slightly enlarged (actually, the renal pelvis - a condition called pyelectasis). Because this is considered a soft marker for Down Syndrome, I went for a triple screen (which I hadn't originally planned on having). The screen came back fine (e.g. about 1/5000 chance of DS, etc). It was recommended that I go for another ultrasound later in the pregnancy to monitor the situation (which apparently usually clears up on its own). So, I went for my follow-up ultrasound today (32 weeks, 4 days) and it turns out that the baby's left kidney is not draining properly. One of the explanations is that it is duplex (e.g. two chambers) and that the lower chamber (the one closer to the bladder) is blocked or not connected to the bladder properly. Another possibility is that there are cysts blocking the drainage. The doctor said they'll be examining the pictures more and DH and I have to meet with specialists in a couple of days. He also said that after the baby's born, it'll have to be on antibiotics right away to prevent infection from reflux and then will have to go for an ultrasound to determine exactly what the problem is. Ultimately, it will probably require surgery of some sort. I'm just feeling a bit frustrated right now because I really don't feel like I know what it all means. The doc said that this increases the chance that the baby has Down's, but not by a lot (e.g. now the chance is probably 1/3500) but it's also not out of the question. The u/s technician was very reassuring and quite nice while the doctor seemed a bit more alarmist, so I really don't know what to think. Anyway, if anyone else has experienced this, I'd love to hear about it. I did a google search for other posts about this (e.g. "duplex kidney", "double kidney", etc. but didn't turn up much - there were quite a few posts about pyelectasis, though). On the upside, we got some great u/s pictures of the baby! Normally here in British Columbia, pregnant women are only sent for one routine ultrasound (at about 18 weeks), so while I'd much rather have had that one turn out normal and not had to go for another, at least DH and I got to see the baby at 32 weeks (and saw that, reassuringly, it's head down, and that everything else about it is perfectly normal - e.g. other measurements, etc.). Thanks for letting me vent. I feel a bit better just having written this. Katie #1 EDD Nov 1/03 |
#2
|
|||
|
|||
Possible duplex kidney at 32 week ultrasound...
"Katie" wrote in message snip Anyway, if anyone else has experienced this, I'd love to hear about it. I did a google search for other posts about this (e.g. "duplex kidney", "double kidney", etc. but didn't turn up much - there were quite a few posts about pyelectasis, though). On the upside, we got some great u/s pictures of the baby! Normally here in British Columbia, pregnant women are only sent for one routine ultrasound (at about 18 weeks), so while I'd much rather have had that one turn out normal and not had to go for another, at least DH and I got to see the baby at 32 weeks (and saw that, reassuringly, it's head down, and that everything else about it is perfectly normal - e.g. other measurements, etc.). I don't have any experience with this, but I did want to wish you well. I hope everything turns out fine--this must be fairly nerve-wracking for you! (((hugs))) and tons of positive, healthy vibes to you. -- Em edd 9/23/03 (38 weeks today!) |
#3
|
|||
|
|||
Possible duplex kidney at 32 week ultrasound...
|
#4
|
|||
|
|||
OT: my own misdiagnosis
On Wed, 10 Sep 2003 05:37:53 GMT, Irrational Number
wrote: As an off-topic followup, I never blamed my perinatologist for the misdiagnosis. However, I had problems with his attitude. I wanted to copy down the name of the diagnosis and he asked why. I said I wanted to do research and he said he would advise me against it. He said there was too much misinformation on the internet, blah blah blah, advise patients not to do too much research. Ouch. My mother's surgeon also was concerned about web searches when I mentioned I'd be doing research about her cancer, but calmed right down when I started rattling off the CDC and related sites as where I'd start. |
#5
|
|||
|
|||
Possible duplex kidney at 32 week ultrasound...
"Katie" wrote in message
Thanks everyone for the kind words - it's much appreciated. We had an appointment with a perinatologist today who had looked over our u/s scans and we feel much better. He basically said all the same stuff as the doctor yesterday but his attitude was much more reassuring. It looks like the baby does have a "duplex kidney" but that it's not as bad a diagnosis as it seemed yesterday. One kidney is perfectly fine, and half of the double kidney is also working fine. So after birth it'll mean antibiotics and further monitoring for the baby, with the possibility of surgery at some point. Apparently it's fully fixable and not at all life threatening since it was detected before birth. I'm going to follow your advice, Anita, and keep researching as much as I can. The more I know about it all, the better and more prepared I feel. It sounds like things are going to turn out fine--maybe a little bit of extra stress/worry, but definitely something you can handle! Information is very powerful--keep up the research. The best news, though, is that even though now I'm classified as "high risk", I still get to retain my midwives as my primary caregivers and the doctor assured me that the rest of the pregnancy and the delivery shouldn't be affected at all. I'll just have to go for a couple more ultrasounds to monitor things. This is *wonderful* news! I'm so happy for you! Best wishes with the rest of the pregnancy and with your little pumpkin :-) -- Em edd 9/23/03 (38w1d) |
#6
|
|||
|
|||
my own misdiagnosis
Em wrote:
"Irrational Number" wrote in message As an off-topic followup, I never blamed my perinatologist for the misdiagnosis. However, I had problems with his attitude. I wanted to copy down the name of the diagnosis and he asked why. I said I wanted to do research and he said he would advise me against it. He said there was too much misinformation on the internet, blah blah blah, advise patients not to do too much research. Like... right! He's going to give me a diagnosis, mention termination in the same sentence (I was at 24 weeks!), then NOT LET ME COPY THE NAME OF THE PROBLEM SO I WOULD NOT DO RESEARCH??? Had I not been a sniveling mess, I would have yelled at him. snip Wow, Anita. What a nerve-wracking experience for you. Things are going well with Pillbug now though, after all of that? Things are totally fine now. After diagnosing Pillbug at 24 weeks with Agenesis of the Corpus Callosum, possible neuronal cell migration problem, and enlarged brain ventricles, the fetal MRI eliminated the ACC and cell migration problem, so the only remaining one was enlarged ventricles. At birth, the CT scan showed normal ventricle sizes, so we were all clear. There was a lot of other drama with the on-call neonatologist regarding my CMV results, Pillbug had respiratory problems and was put in the oxygen tank, and also an infection so he got antibiotics. Still, he was 9.5 lbs. at birth, and my OB said, no wonder his ventricles were big, he's a big baby with a BIG HEAD. To get back partially on topic, our web research turned up some good results. We found lots of brain MRI images that helped me visualize the problem and found a support group that had concrete data we needed. I'm just thankful for having a husband who felt exactly as I did that we were going to do whatever was necessary to find out about the problem and for having an OB who was willing to do whatever I wanted him to do to get me information. On the other extreme, I once counseled a family through my volunteer work that came to me with a one word diagnosis of a *very* rare condition written down on a scrap of paper and said, "the doctor says our newborn has this. He told us to go look it up on the internet. Do you have internet here and can you help us?" This family had *never* used a computer before and had no idea where to begin. They had no further information than what was written on the paper and a little sketch of what deformity to expect. They had also *not* been told that there was a specialist for the condition in the very town in which they live (I just so happened to know the name and other info for the specialist from my work with other families, but if they hadn't happened to come in during my shift, who knows when they would have found him). I was completely stunned and dismayed. Good for you! I'm so glad that family found you! For Katie: I know the kind of hell you go through when you get a bad diagnosis. Just arm yourself with information and push through the problem. We were looking into increasing our life insurance, me quitting work to take care of Pillbug (ACC comes with seizures and other such stuff), whatever we could do to take care of our baby. Gosh, just writing about this brings all the feelings back. There were lots of tears, and now I'm so thankful that we did what we did. I savour every day with Pillbug. -- Anita -- Mommy to Pillbug, almost 3 months -- SUCCESS FOUR FLIGHTS THURSDAY MORNING ALL AGAINST TWENTY ONE MILE WIND STARTED FROM LEVEL WITH ENGINE POWER ALONE AVERAGE SPEED THROUGH AIR THIRTY ONE MILES LONGEST 57 SECONDS INFORM PRESS HOME CHRISTMAS. |
#7
|
|||
|
|||
my own misdiagnosis
On Wed, 10 Sep 2003 15:46:54 GMT, Irrational Number
asserted: snip For Katie: I know the kind of hell you go through when you get a bad diagnosis. Just arm yourself with information and push through the problem. We were looking into increasing our life insurance, me quitting work to take care of Pillbug (ACC comes with seizures and other such stuff), whatever we could do to take care of our baby. Gosh, just writing about this brings all the feelings back. There were lots of tears, and now I'm so thankful that we did what we did. I savour every day with Pillbug. -- Anita -- Mommy to Pillbug, almost 3 months Thanks, Anita. I'm so glad that things turned out alright for you and for Pillbug. And (in response to your other post about how your doctor suggested you not do any research) all I can say is holy crap! What a horrible attitude for a doctor to have! When I mentioned to the perinatologist yesterday that I'd been doing some internet research, he said "Great!". He also suggested that we set up an appointment with a nephrologist sometime before the baby comes just so that we can get more info on the condition and possibilities for after the baby's born. His opinion was that the more we know ahead of time the better off we'll all be and that it will be far less stressful than having to face everything on top of having a newborn to care for, being exhausted from labour, etc. I'm really happy with his approach to this and it's making it much easier to deal with (plus hearing that it's not life-threatening for the baby and that it's fixable). Katie #1 EDD Nov 1/03 (32w5d) |
#8
|
|||
|
|||
Possible duplex kidney at 32 week ultrasound...
|
#9
|
|||
|
|||
my own misdiagnosis
Katie wrote:
And (in response to your other post about how your doctor suggested you not do any research) all I can say is holy crap! What a horrible attitude for a doctor to have! When I mentioned to the perinatologist yesterday that I'd been doing some internet research, he said "Great!". He also suggested that we set up an appointment with a nephrologist sometime before the baby comes just so that we can get more info on the condition and possibilities for after the baby's born. His opinion was that the more we know ahead of time the better off we'll all be and that it will be far less stressful than having to face everything on top of having a newborn to care for, being exhausted from labour, etc. I'm really happy with his approach to this and it's making it much easier to deal with (plus hearing that it's not life-threatening for the baby and that it's fixable). Good for you! I'm so glad that your baby will be okay (whatever interventions are needed) and that you're actively doing all you can. I'm wishing the best for you and baby! -- Anita -- -- SUCCESS FOUR FLIGHTS THURSDAY MORNING ALL AGAINST TWENTY ONE MILE WIND STARTED FROM LEVEL WITH ENGINE POWER ALONE AVERAGE SPEED THROUGH AIR THIRTY ONE MILES LONGEST 57 SECONDS INFORM PRESS HOME CHRISTMAS. |
Thread Tools | |
Display Modes | |
|
|
Similar Threads | ||||
Thread | Thread Starter | Forum | Replies | Last Post |
Why Routine Pregnancy Ultrasound is Useless and May Be Harmful | Jenrose | Pregnancy | 0 | September 4th 03 07:06 AM |
20 Week Ultrasound | Daye | Pregnancy | 5 | August 23rd 03 11:08 PM |
7 week ultrasound | MRC403 | Pregnancy | 2 | August 13th 03 07:02 PM |
My 7 week ultrasound | Henrietta Louise | Pregnancy | 5 | August 10th 03 07:09 PM |
17 Week Ultrasound | Crystal Dreamer | Pregnancy | 3 | July 29th 03 01:24 PM |