Genetic Counseling Appointment

I had a genetic counseling appointment today. We were hoping to find a
possible cause for Mariam's death, anything we should watch for with this
pregnancy, and hopefully find out if the boys are identical or fraternal.
This was a huge waste of time, and I really wish I hadn't went. I was crying
before I even got back out to the van. We were there for an hour and a half.
The appointment was during their usual naptime, so of course they were
cranky. Then I forgot the formula so I had to give them bottles of water.
The doctor yelled at me for giving them water, telling me that it would
cause something called water toxicity by taking the salt out of their
system. What was I supposed to do, just let them scream because they wanted
a bottle???

They couldn't (or wouldn't) tell me anything I don't already know.
Basically, yeah, this happens a lot in your family, but it's normal. We
can't tell you if it'll happen again, so just don't worry about it. Based on
the pictures, I have an idea of what caused the fetal demise, but since they
are just pictures, I can't tell you.

What a waste of time!!!! I am so upset. He could have at least told me what
he thought it might have been. They don't do zygosity testing and told me
I'd have to look into a DNA testing place. I can't say enough what a waste
of time this was and now I'm all emotionally worked up over it. I wish I
hadn't went!

I didn't really expect to find anything out but they could have presented
their information a little better.

--
-Lisa
Due September 2005
Mom to Aaron & Nicholas born 7/25/04
Mom to Mariam Averi, born sleeping 9/10/03

What a jerk! I had a genetics counseling appointment when I was pregnant to
see what our risks of having a down syndrom chilc because Jeff had a sister
that had it. We figured out that the only REAL risk our kids have is Type 2
diabetis and cancer showed up more then I would like but they said that most
of the people that have had cancer had it later in life so that was more
common.. dont remember everything now.

Tori

"Crystal Dreamer" wrote in message
...
I had a genetic counseling appointment today. We were hoping to find a
possible cause for Mariam's death, anything we should watch for with this
pregnancy, and hopefully find out if the boys are identical or fraternal.
This was a huge waste of time, and I really wish I hadn't went. I was
crying
before I even got back out to the van. We were there for an hour and a
half.
The appointment was during their usual naptime, so of course they were
cranky. Then I forgot the formula so I had to give them bottles of water.
The doctor yelled at me for giving them water, telling me that it would
cause something called water toxicity by taking the salt out of their
system. What was I supposed to do, just let them scream because they
wanted
a bottle???

They couldn't (or wouldn't) tell me anything I don't already know.
Basically, yeah, this happens a lot in your family, but it's normal. We
can't tell you if it'll happen again, so just don't worry about it. Based
on
the pictures, I have an idea of what caused the fetal demise, but since
they
are just pictures, I can't tell you.

What a waste of time!!!! I am so upset. He could have at least told me
what
he thought it might have been. They don't do zygosity testing and told me
I'd have to look into a DNA testing place. I can't say enough what a waste
of time this was and now I'm all emotionally worked up over it. I wish I
hadn't went!

I didn't really expect to find anything out but they could have presented
their information a little better.

--
-Lisa
Due September 2005
Mom to Aaron & Nicholas born 7/25/04
Mom to Mariam Averi, born sleeping 9/10/03

Crystal Dreamer wrote:

I had a genetic counseling appointment today. We were hoping to find a
possible cause for Mariam's death, anything we should watch for with this
pregnancy, and hopefully find out if the boys are identical or fraternal.
This was a huge waste of time, and I really wish I hadn't went. I was crying
before I even got back out to the van. We were there for an hour and a half.
The appointment was during their usual naptime, so of course they were
cranky. Then I forgot the formula so I had to give them bottles of water.
The doctor yelled at me for giving them water, telling me that it would
cause something called water toxicity by taking the salt out of their
system. What was I supposed to do, just let them scream because they wanted
a bottle???


Oh how awful. And pfft on him about the bottles. Your boys are over
9 months old, right? DD2 is 9 months and routinely drinks some water.
In fact, we had a *very* busy day on Saturday involving warm weather,
the park, and an airline trip. She refused to nurse, refused her
bottle of breastmilk, so she drank water all day when she was thirsty
(that she'd take, stinker). She's fine.

They couldn't (or wouldn't) tell me anything I don't already know.
Basically, yeah, this happens a lot in your family, but it's normal. We
can't tell you if it'll happen again, so just don't worry about it. Based on
the pictures, I have an idea of what caused the fetal demise, but since they
are just pictures, I can't tell you.

I'm sorry it was such a waste. I'm frustrated and I wasn't
even there!

Mary W.

((hugs)) I'm so sorry you were treated like that! Bugger on him!

Sharalyn
mom to Alexander James (9/21/01)

Crystal Dreamer wrote:

I had a genetic counseling appointment today. We were hoping to find a
possible cause for Mariam's death, anything we should watch for with this
pregnancy, and hopefully find out if the boys are identical or fraternal.
This was a huge waste of time,

Sorry you had a bad experience... I've never
found genetic counseling to be of any use. Our
person was pretty clueless.

Re the water: if you give your babies formula,
you *should* be giving them water. So, that
doctor was on crack.

-- Anita --

What a jerk! Of course you can give your boys water. Hmmm - people
like that make me mad and I wasn't even there.

I'm sorry you weren't able to get any more infomation about what
happened with Mariam or about the boys. What a frustrating day.

I hope your pregnancy is going well :-)

Take care
Cam

Sorry you didnt have a great outcome, on the identical verse fraternal for
your twins you can get a genetic test via online kits they send you a
special swab kit that you take in their mouths and send it back and they let
you know the results. I have a friend here in australia who used one from
online it cost her about $150 australian which isnt too bad when you
consider that it is a genetic test. I dont know the company name but I am
sure a google search will show someone up who does it. BTW she had always
thought her boys were fratental and they are in fact identical.

Cheri
Mum to Sean and Jasmine (3years)
#3 due June
"Crystal Dreamer" wrote in message
...
I had a genetic counseling appointment today. We were hoping to find a
possible cause for Mariam's death, anything we should watch for with this
pregnancy, and hopefully find out if the boys are identical or fraternal.
This was a huge waste of time, and I really wish I hadn't went. I was
crying
before I even got back out to the van. We were there for an hour and a
half.
The appointment was during their usual naptime, so of course they were
cranky. Then I forgot the formula so I had to give them bottles of water.
The doctor yelled at me for giving them water, telling me that it would
cause something called water toxicity by taking the salt out of their
system. What was I supposed to do, just let them scream because they
wanted
a bottle???

They couldn't (or wouldn't) tell me anything I don't already know.
Basically, yeah, this happens a lot in your family, but it's normal. We
can't tell you if it'll happen again, so just don't worry about it. Based
on
the pictures, I have an idea of what caused the fetal demise, but since
they
are just pictures, I can't tell you.

What a waste of time!!!! I am so upset. He could have at least told me
what
he thought it might have been. They don't do zygosity testing and told me
I'd have to look into a DNA testing place. I can't say enough what a waste
of time this was and now I'm all emotionally worked up over it. I wish I
hadn't went!

I didn't really expect to find anything out but they could have presented
their information a little better.

--
-Lisa
Due September 2005
Mom to Aaron & Nicholas born 7/25/04
Mom to Mariam Averi, born sleeping 9/10/03

"Crystal Dreamer" wrote in message
...

What a waste of time!!!! I am so upset. He could have at least told me
what
he thought it might have been. They don't do zygosity testing and told me
I'd have to look into a DNA testing place. I can't say enough what a waste
of time this was and now I'm all emotionally worked up over it. I wish I
hadn't went!

Wow, the appointment really sounded like it sucked. I'm sorry you had to
waste your time.
--
Joy

Rose 1-99
Iris 2-01
Spencer 3-03
# 4 Oct 2005

Crystal Dreamer wrote:
....
What a waste of time!!!! I am so upset. He could have at least told
me what
he thought it might have been. They don't do zygosity testing and
told me
I'd have to look into a DNA testing place. I can't say enough what a
waste
of time this was and now I'm all emotionally worked up over it. I
wish I
hadn't went!

I didn't really expect to find anything out but they could have
presented
their information a little better.

Those buggers have no bedside manner whatsoever

Elle

On Wed, 11 May 2005 14:54:47 -0500, Crystal Dreamer wrote:

I didn't really expect to find anything out but they could have presented
their information a little better.

I *SO* hate it when doctors give you the impression you are nothing but a
mere number to them. Bleeech! I'm sorry you had to deal with this one, he
could and should have made more of an effort. Jerk.

--
--I
mommy to DS (July '02)
mommy to four tiny angels (Oct '03 - Oct '04)
guardian of DH (age classified)
expecting twins (boy/girl) in August